Wednesday, August 9, 2023

Google Alert - Battens Disease

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Battens Disease
Daily update August 9, 2023
NEWS
Batten Disease, also called Neuronal Ceroid Lipofuscinoses (NCLs), is a paediatric neurodegenerative disorder caused by an abnormality in a child's ...
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"What typically happens with Battens disease is seizures, loss of speech, motor skills and sight, dementia and eventually death," said Tucker.
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"I'd never heard of Battens disease, so I googled it straight away. I just broke down in hysterics. How could this be happening to my baby?".
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